Category Archives: Uncategorized

End-of-life resources for people with metastatic cancer and their carers

Compiled by Stephanie Sugars,

General Resources

Growth House, Inc. – free access to over 4,000 pages of high-quality education materials about end-of-life care, palliative medicine, and hospice care, including the full text of several books

National Hospice and Palliative Care Organization – Caring Connections – to help people with cancer and their families to better cope with cancer

National Cancer Institute: Coping with Cancer: Supportive and Palliative care

Metastatic Breast Cancer Network – Finding Financial Assistance

Palliative Care – Directories

Palliative care is an umbrella term for medical care meant to treat, rather than cure disease. One type of palliative care is hospice care – available to those with terminal illness.

International Association for Hospice and Palliative Care – Global Directory

European Association for Palliative Care

Get Palliative Care – USA

Palliative Doctors: Compassionate care at any stage of an illness

Canadian Hospice and Palliative Care Association

Asia Pacific Hospice Palliative Care Network – Includes Australia and all regions of Asia

Advance Care Planning  

Five Wishes for Adults (also forms for adolescents, young adults and children)

Dying Matters: raising awareness of dying, death and bereavement – UK-based, but for all

PREPARE: An online, multi-step program, incorporating videos, that can help you: make medical decisions for yourself and others; talk with your doctors; get the medical care that is right for you

The Conversation Project: talking about the end of life

Speak Up: Start the conversation about end of life care – Canada

Deathwise: A nonprofit organization passionately committed to helping people talk about, make decisions and plan for the end of their lives

Groundswell Project in Australia has many online and country-wide resources

CINDEA – Canadian Integrative Network for Death Education and Alternatives

Living Wills and Powers of Attorney for Health Care: An Overview

National Cancer Institute: Planning the Transition to End-of-Life Care in Advanced Cancer (PDQ®) for clinicians

Hospice (see also Palliative Care Directories)

eHospice – European and US Directory

Hospice Directory – USA

Nursing Homes, Hospices and End-of-Life Resources

Compassion & Choices – support, education and advocacy for EOL choices

After Death Care

To learn about home funerals and green burials/cremations

Natural Death Centre – AU –

National Home Funeral Alliance – USA –

Home Funeral Directory – USA –

Good Funeral Guide – UK –

For carers of those with metastatic cancer

Next Step in Care: Family caregivers and health care professionals working together

National Cancer Institute: End-of-life Care for People with Cancer

Caring for the patient with cancer at home

Healthy Caregiving: Creating a culture of caring

Caregiver Resources from RobCares

Grief and bereavement Grace Happens

Coping with loss by Association for Death Education and Counseling

Griefwalker , Stephen Jenkinson, 70 minute film and his website